I was introduced to Meniere's Disease three (3) years ago. It is a disabling disease, usually affecting only one (1) ear, and has four (4) common symptoms:
Vertigo - a sensation of rapid spinning and dizziness,
Tinnitus - a ringing and/or roaring noise in the ear,
Aural Fullness - the sensation of pressure or pain in the ear, and
Hearing Loss - which changes daily and gets worse over time. The disease has no known cause and there is
NO cure. It affects people differently and ranges from mild to disabling. It usually affects those aged 20 to 60, but can affect children and the elderly as well. The symptoms can sometimes be treated with lifetime changes and diet modifications, but may require invasive treatments and/or risky surgeries. These actions help eliminate extreme dizzy episodes and nausea, but other multiple and varying symptoms will continue.
My introduction, to this disease, occurred three (3) years ago when my wife Patty was diagnosed. Since that time, Patty has gone through many trials, tribulations, and revelations about life and what it all means. She has struggled through diet restrictions (losing much weight), nausea (vomiting for 10-12 hours), extreme dizzy spells (2-3 days a week), incapacitation (bed ridden for days), insomnia, and extreme sensitivity to noise, lights, and movement.
Since that time, we have visited various doctors, spoken with others who suffer from the disease, and read many articles. All actions have come to the same conclusion, it is a terrible disabling disease with
NO cure. However, there are three (3) main procedures that help to eliminate the dizziness. These procedures are: Endolymphatic Decompression/ shunt surgery, Gentamycin and/or steroid ear injections, and Vestibular Neurectomy /cutting the balance nerve. Each procedure is designed to ease the symptoms, and allow the Meniere's sufferer to "get their life back." And each procedure is more critical and invasive respectfully.
Over the course of the last three (3) years, Patty has had all three (3) procedures done. Each has helped relieve some issues, but none has eliminated the disease. There is
NO cure! The last procedure, Vestibular Neurectomy, (performed 12-20-13) has allowed her to "get her life back" to some degree. After many, many countless hours of exercising and therapy, she is once again independent. Driving a car, walking, attending noisy events, riding her tricycle, and even eating an unrestricted diet have become celebrated events. She still has many Meniere's symptoms, but has not experienced any dizziness or nausea since. She is learning to live and be blessed with the other symptoms, knowing that extreme dizzy spells are not likely to re-occur.
Through all this, we have learned that money for Meniere's Disease research is very uncommon. Patty and I are hoping to change this. We have established a research fund, "
Burkey's "Vision of Hope" for Meniere's Research" through the University of Iowa Foundation. Donations can be made online through the direct link:
www.givetoiowa.org/burkey